Thursday, April 30, 2009

Pregestimil to the rescue?

Dominic is now up to 60mL every 4 hours with Pregestimil. It's a VERY broken down formula that is easier for babies to digest and he seems to be absorbing it better. Along with the formula, he's on a medicine called Reglan... it's to help his stomach empty faster into his intestines which is where the absorbing occurs. They put him on this because he threw up his feed once... I googled Reglan and am NOT impressed. There's a whole slew of side-effects and I'm not even positive he needs it, but I'm going to just go with it for now. When he busts out of the NICU I'm going to ask his GI Doctor to take him off and we'll see how he does. I hate giving him meds.. there's so much that can go wrong, especially when babies are given meds so young- it can really affect them. He's also on Prilosec to help with the reflux that's generally associated with Gastroschisis babies. That's another one I'm going to try to get him off of as soon as possible. If he truly needs it then fine, that's best- but if the benefit doesn't outweigh the drawback for him, I don't want him on the meds. Anyway, his poops are looking a little more formed, although not quite what a normal baby's poop should look like. That one throw up was the only one so far with this formula- he's keeping it down pretty well, so that's a huge relief!
The other night Dominic got a fever of 101.3 so they ran alllllll those tests again (blood, urine, spinal fluid) to see if he had an infection. Babies don't really get fevers unless there's an infection- it's the body's way of fighting off an infection by raising the temp. This has happened twice before with no sign of infection... and so far the tests are showing the same thing: no infection. This is good and bad because it's nice that he doesn't seem to have any infections, but that makes us wonder where the fevers are coming from. If they found an infection, they could treat it and that would be the end of it (hopefully). The Doctors are brainstorming as this confuses them as well... throwing around ideas that maybe he does have an (invisible?) infection, or maybe he just gets random, unrelated fevers. The latter is actually a "diagnosis" but I Think it's just a Dr's way of saying they have no clue why someone is getting fevers. Please pray that he doesn't get any more fevers- along with the fact that a high fever can cause serious damage to a baby, I really don't want the running those tests again and poking him all over for well over an hour.
The plan is to continue slowly increasing his feedings- he's almost up to a full feeding but not quite there yet. Once they see him doing well on full feedings, he can come home again. His weight had gone down to 6lbs. 12oz, but is now back up to 7lbs. 7oz, so I'm thankful for that. He needs to get some serious weight on him so he can grow longer and hopefully his intestines will straighten out more!!

Thank you all for your support and prayers, we couldn't get through it without you.

Stephanie

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