Welllllll- as you can see from the title, Dominic is home! He came home on Friday, May 15th and has been doing pretty well! He had a Broviac put in and has a small amount of TPN & Lipids running all day to keep his nutrition up since he's not eating full feeds. He's taking 45-50mL every 3 to 4 hours of Pregestimil and he seems to be doing well with it, eventhough sometimes he's hungry. We're still not out of the woods though- where his broviac comes out of his chest has been a bit red and today at the doctor appt, they took a skin culture to see if anything (infection-wise) is growing there. It's pretty worrisome to have that line in there for that exact reason- infection. It's a central line close to the heart so any infection at all can turn into a full blood infection very quickly. Please pray that #1) he doesn't have and will not get an infection, and #2) that he doesn't need the broviac in for a real long time so we can eliminate that risk completely.
Dominic tends to confuse his days and nights which makes Rick and I pretty darn tired, and the past couple days he's been more cranky- along with the fact that he's had a temp of 99 yesterday and today... like I said- hopefully not an infection but if it is one, pray for good antibiotics and a strong immune system!! His favorite part of the day seems to be in the morning around 5 or 6 am; he'll smile and play and let you talk to him and just be very content. There's a couple other parts of the day he's like that too but for the most part he's sleeping, eating, or crying- just like any other baby. We're trying to do a little tummy time each day but it doesn't last long because he starts to get upset. Oh well, I'll keep trying!!
Thank you all so much for all the love and support- I'm going to keep updating this blog, so stay tuned if you're still interested! We still have work ahead of us!!
Stephanie
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I'm so glad he's home and I'm praying that he doesn't have an infection.
ReplyDeletePlease do keep us updated. I think about him all the time. I hope things can go a little smoother soon. He is very cute and always seems to look very curious.
ReplyDeleteAww, so happy for you! I think about you guys and pray for Dominic lots...I'll keep praying and hope it stays this good for you:)
ReplyDeletethank you everyone! we so appreciate it!
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